Wednesday, December 29, 2010

Out with the caffeine, in with the monitor ...

So it's coming up on the end of December and that means it's been 90 days since Lucy had her last apnea episode. They told me that she could stop wearing her monitor after 90 days of no unusual activity. And as I may have mentioned on here, we stopped making her wear her monitor a few weeks ago ...

But it's also time for her to either start being weaned off the caffeine or get a new prescription refill, so I called yesterday and the apnea specialist and our pediatrician agreed to start weaning her off the caffeine! YES!!! So exciting. The less exciting part is that they need her to wear the monitor while we're weaning her off and then for 7-10 days after she's completely off the caffeine and then if the download is normal, we can take her off the monitor as well.

So it's great news and kind of stinky news. That means for at least two weeks she has to wear the monitor, and I hate that, just being honest. During the day it's impossible to keep up with her since the monitor cord only goes so far it means constantly moving the monitor around with her as she crawls and making sure she doesn't pull on the wires or try to pull off the band with the electrodes now that she's very able to do so. During the night it means having to wake up if it goes off for a false alarm because she moved too much in her sleep and the electrode stopped touching her body for just a second. This wakes her up (the alarm is super loud) and wakes me up of course. I'm bummed.

I thought maybe I would just let her wear it during the day since she's sleeping pretty great at night now (in five hour stretches) and that means I'm sleeping well, too! But during the day is also a pain in the butt. So you can see my problem... I keep reminding myself it's only for two weeks -- we can do it!

She had her 9 month pediatrician visit scheduled for Monday but I was not feeling well with kidney stones and she's very snotty and congested and coughing, so I rescheduled it for tomorrow. I'm interested to see how much she weighs. At the moment, I'm just breastfeeding her because she seems to be completely uninterested in solid food, both baby food and finger food. I've tried different flavors of baby food, warmed it up, left it cold (if it was a fruit), tried those Baby NumNum wafers, yogurt melts, soft veggies cut up, and over Christmas we tried giving her almost any of the food on our plates and she was just like, "No way!" So I'm trying not to stress too much about it. If she is gaining weight appropriately, I will worry less.

I'll update as soon as we have her pediatrician visit!

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